An NHS Patient Speaks

Doctors & nurses are going public  & saying outright say they do not have the resources to care for patients properly.

We have seen what all the tabloids have to say on the matter.

We hear about patients dying because they didn’t get seen in time.

Sometimes patients speak up, this is one of those times.

Imagine being in this situation yourself;

Doctors can’t find out what is wrong with the with patient, the patient knows it’s because there are not enough resources, but regardless the doctors label the patient crazy to give some kind of answer.

The patient tries to end their own life because they can’t take the physical pain they’re in, & it is an existence not a life when you have no real quality of life. The patient is found by chance, they’re brought back from the brink of death even though they’re terminally ill – the doctors then lock the patient up in a mental health unit for their own safety, to keep the patient from harming themselves again. However the mental health unit can’t cope with a very disabled or physically ill person – not least of all because the money they had for redesigning the wards has been lost. They do not have the correct equipment or enough staff to care for the patient properly & if the patient dies because the staff at the mental health unit know nothing about the patients complicated medical condition it seems that’s OK – as long as the patient didn’t kill themselves it’s completely acceptable.

It’s got to the point now where the patient doesn’t even bother with doctors because there is no point, there are many avenues that haven’t been explored, tests not done but we are back to the complete lack of resources within the NHS.

So free patient is left in genuine physical pain with visible swelling, abnormal blood tests, & audible snapping in the joint which has been witnessed by several individuals,  including the mental health social worker! But I’m sure it’s shared psychosis and there is no noise at all really.

The patient wishes they were just crazy because they could at least go out & source a way of putting themselves out of this misery.

Where is this happening you ask?

You won’t belive me but here goes, it is in Britain. It is in the year 2018, not 1918, not in a poor nation, it’s actually one of the richest nations in the world.

This is the nation that can afford to pay for 2 rich people to have an exuberant wedding because one was born with the right surname. The nation who can afford not to go after those who dodge paying taxes, instead hounding people like the patient, trying to say they don’t need PIP (disability benefits) at the rate they got DLA at, despite the fact that they are now worse. The country where this person has to prove they’re unfit for work when the entire system is set up against them. The country where MPs who are employees of the public can have pay rises, holidays, 2 homes – the list is pretty much endless – but it can’t afford to pay or pay for doctors, nurses and hospitals to stop the public suffering.

This has got to change. This is not just about which political party you support, or which ‘side’ you deem yourself or others to be on, this is one human saying to other humans this is not good enough. It could be you next, or your mum, or your child. Something has to change. The patient wouldn’t wish this on many people except perhaps on those in charge for a couple of days so they can ask them if they can imagine living that way for over a year.

The patient lies in bed broken & alone, tonight they’re in so much pain again that they can’t sleep, tears quietly rolling down their face because they haven’t even got the energy to cry properly, but the tears won’t stop.

I implore the Conservatives & Jeremy Hunt to take immediate action so nobody has to end up like this this, so people are not suffering in a similar way or as is often the case in a worse way up & down the Country every single day.

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An Ethical Dilemma, and A Patients Nightmare.

Mental Health Act, Capacity, & Euthanasia in the UK

Is the Mental Health Act being illegally used In Great Britain today?

 

This page is not finished yet, it is a work in progress, I am not well and can’t always write lots at a time 

 

To give you a little background to this post, I will share with you my own experiences. I may draw on other sources for reference, or comparisons, but it will mainly be written due to my own experiences, and the ethical dilemma Doctors and nurses face when the lines between mental and physical health blur.

 

I have been ill with various things for most of my life. Whether this was just unlucky, or if there is something more to it is a question I’ll never find the answer to because nobody is really interested – they want to treat the here and now, not bothered so much by the how. I question it because there’s a lot of illness in my maternal family, including a very rare illness, Downs Syndrome, and more.

I was about ten years old when my life of physical illness really began. I had some experience, I’d had my tonsils removed at eight, but many kids have that done. I’d had some horrific bouts of cystitis at a very young age – why is probably down to the condition that started the ride of a few highs, and far too many exceptionally low experiences with the NHS.

The start of the “mystery illness”  first hospitalised me overnight. I had crippling stomach pains, but they couldn’t find anything wrong, so I was sent on my way.

I was 12 when I started my periods, almost all the girls at that age were excited in an odd way – it is some sign we are ‘grown ups’ – the naivety of youth! I remember the night it happened quite clearly, the following day is a scar that will never fade. I went downstairs for my breakfast, all I had been thinking the entire time I was getting dressed was “Is this normal?”. By the time I sat for my breakfast I did not want to be a female, I did not want to have to put up with this pain for most of my life! It was unreal, I actually begged my Mum not to send me to school. My mum just said that this was something I was going to have to get used to, I wasn’t staying off school because I was on my period.  I remember my first lesson after registration was maths, provided it is still standing and unchanged, I could take you there now,  26 years later and show you exactly where I was sat. I could also show you where I had to run to in order to get to the toilets, and which cubicle I was violently sick in.  It was the pain which had made me sick.

The next several years of my life were an absolute nightmare. At school it did not matter if I went during break time to change my sanitary pad and tampon, if I was then in an hour long lesson I would flood to the point of it messing my skirt up. My mum used to have to write me letters to excuse me from P.E. at the worst times, or at the very least excuse me from showering after PE because I would have made such a mess in a communal shower. I don’t think you need much imagination to work out what bullies first taunted me over! Things went from bad to worse, I started getting crippling stomach pains after eating certain things, although oddly the same thing on another day I could eat no problem. I also started bleeding when I was opening my bowels. At about 13 years old as you can well imagine I sh uted for my Mum. She was alarmed by the amount of blood, and after it carried on happening she took me to the Drs. I have to be honest, I lost count of the various appointments, interspersed with emergency admissions to hospital with crippling stomach pains.

There are things I can’t forget no matter how hard I try. The investigation I had done called a sygmoidoscopy, I was screaming in pain, my mum was trying to comfort me, my dad outside in the waiting room had to leave because he couldn’t stand listening to me in so much pain. The Doctor was really very nasty, he told me to shut up, I was being ridiculous it didn’t hurt! At this point it is necessary to let you know that:

  • If you go & have this exact same procedure now, you are given either sedation or entonox (gas and air), so I am speculating that since that time they’ve discovered actually it does bloody hurt!
  • I have since also read posts on medical support forums where grown men have said they were in agony throughout the procedure.
  • When I eventually got diagnosed, regardless of whether or not that test hurt anyone else it would have hurt me!

By rights I was still a child at this tim, yet when I was admitted to hospital  I was always put on adult wards. One particular admission the lady in the bed next to me had gangrene in her feet – that sickly sweet smell has been etched in my memory forever. I heard another lady in the bed opposite me crash, the staff attempting CPR, her curtains being shut for ages, then she was just no longer there – I don’t think I actually realised at that point she had died, but it was still upsetting enough. I was on a drip, and wasn’t allowed to eat or drink. My Mum and Dad Knew I smoked, but they didn’t condone it as a rule,  however when one of the doctors tried telling them that there was nothing wrong with me, it was ‘all in my head’, and that all I did was sit in the TV room smoking, they’d not seen any evidence of rectal bleeding (well if a person is not eating for 9 days they tend not to to the toilet – odd that! My parents asked him what else did they expect me to do on an adult ward, with nothing to do, surrounded by extremely sick people, and when I wasn’t eating or drinking either?! I had also the week before just done a weeks worth of samples, I wasn’t allowed to eat red meat or brush my teeth to eliminate the blood coming from either source. So they also enquired why they weren’t looking at those samples, they’d seen them & knew there was blood in every single one! It later transpired after an investigation that the lab technician who had taken receipt of them had ‘forgotten to write in my notes about the blood, and didn’t send them for further evaluation, actually she accidentally threw them away! But never mind hey, I mean it was all in my head……..

At 16 as well as still suffering with my stomach, and the bleeding, I also got really ill, I also contracted a severe case of Glandular fever, it actually developed in to meningitis – it was timed to perfection, 2 weeks before my final exams.

My stomach issues were eventually diagnosed when I was 21, I mean 11 years was not bad was it…

Turned out I have Endometriosis, it was discovered during a laparoscopy (camera inserted in your stomach through the belly button.) A very prominent doctor in gynaecology happened to be visiting my local hospital at that time, and he specialised in Endometriosis. When I got back to the ward, and was awake the Doctors came and spoke with me, they explained What I had, and I was hit with the news that I would never have any children naturally again. Luckily I fell pregnant when I was 17 and have the most amazing son, he was not a planned baby, I was actually on the pill but was taking antibiotics,  my GP didn’t warn me that they could interfere with the pill working – but I would not change that for all the money in the world. I was still absolutely devastated That I was never going to give him any siblings, I always wanted at least 2 children. They told me that during the procedure they had tried to run dye through my fallopian tubes, but they were totally blocked. I even  had ‘guitar string’ of scar tissue going from my pelvis up to my liver, the specialist told Me I had the worst case he’d seen in 30 years – so at Least I won at something that day!

I could sit here for a few days and probably still be going through all the different operations, procedures, tests, illnesses and injuries I’ve had from then to now, so I will try to bring this first section to a bit of a close.

Currently I have Cirrhosis of the liver, stage 4, I have been suffering for over 2 years with spinal issues that have gotten worse and worse, No Doctor would listen to me in all honesty – I think they most definitely believed I was making up, or at the very least making things out to be worse than they are. I eventually found out in November (from an MRI I had done in The May when in hospital with my spinal symptoms…..), that I have a curvature in my cervical spine which is what affects my left arm, causes pain and all kinds in my shoulder, neck, shoulder blade, arm. I also in May had a bulging disc in my lumbar spine which even then was trapping the L5 S1 nerve roots. They did ANOTHER MRI While I was in hospital then – yet again I have still not been given any results for it!  After all these years I don’t give in to any illness easily, I’ve been up and out of bed after surgery when others are on morphine, so I am no wimp, but this pain I wouldn’t wish on anyone but rapists and paedophiles. Even my ex neighbour who had me so terrified I wouldn’t go to my own toilet during the night because you could hear through the walls – I wouldn’t even wish it on him. I have been prescribed painkillers for a long, long time with everything else (TO BE CONTINUED)